39 pounds of love, an inspiration

Ami Ankilewitz, life 2 Comments »

There comes a time in one’s life when we ask ourselves, what the fuck - the weather’s too hot, the subway’s crowded, or our pint of beer is too frothy. Due to my being at home today, and my gift for channel surfing, I happened upon an HBO documentary called “39 pounds of love”. If you haven’t heard of the flick, afford me the elbow room to enlighten you. The movie documents a journey, a journey encountered by a man called Ami Ankilewitz, who suffers from a very late-staged version of Muscular Distrophy, called SMA/2, which is normally fatal - he has lived with the condition for most of his life and today weighs in at 39 pounds and struggles to communicate from his wheelchair, creating his own animated movies by way of his one finger that works, to engage the mouse click.

The journey takes him on a path to find the doctor that predicted his demise at a young age, and crosses many avenues to reconnect with loved ones in his life (that he hasn’t seen in years - including his brother) and a passion to ride on a Harley Davidson.

This movie rocked me to the core. [fyi, that doesn't happen often, not to mention makes my blog (which I try so hard to update)]

If you haven’t seen it, watch it. If you have Tivo or PVR, record it, and watch it at a later date… the true level of inspiration that Ami exudes is unabound, and without warrant, touching.

Official website - 39poundsoflove.com

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